Social media and online groups can be a great source of support for anyone with eczema. They can provide useful advice, raise awareness, as well as making sure that you know you’re not alone. Online support groups can be a very positive support network for eczema sufferers. The communities offer a place for people to relate and interact with other people going through the same things, and have a role in ‘lifting the veil’ – showing that other peoples’ skin is not always perfect and helping to show people with eczema that they’re not alone in having insecurities.
However, you have to be careful when going online to discuss your eczema. You want to support people who are going through flare-ups, but sometimes you don’t want a constant reminder of the struggles that other people are going through, as this could impact on your journey.
Online, unregulated communities can also mean eczema sufferers are exposed to bad advice that is not medically approved or safe. It is therefore very important that online communities are used with care, as although most of what is posted is supportive and positive for those with the condition, some people will post dangerous advice. This advice supports a recent study conducted by the British Association of Dermatologists, which found that 36 per cent of the most viewed eczema videos on YouTube are potentially harmful.